Simulate Patient Response to Consent and/or HIPAA Authorization to Release Data

[PhDResearchGWU]

Dear Synthea Community:
Is there a way to simulate patients' response to consent to research and/or responses to HIPAA authorization forms to release PHI data?
For reference, I'm a PhD candidate that is developing AI models related to healthcare regulatory compliance and want to test my thesis on Synthea data.
All the best,
AJ

[jawalonoski]

You would have to edit each module where you would want to add consent and authorization.

One example for consent to a research is available in the Module Builder...

• Navigate to https://synthetichealth.github.io/module-builder/
• Click "GitHub Modules"
• Click "alzheimer_refresh"
• Click "anti_amyloid_beta_monoclonal_antibody_treatment.json"
• Find and examine the following states:
  • Initial assessment for clinical trial
  • Patient consented to clinical trial
  • Enrollment in clinical trial

Warning

This example probably does not match codes or patterns used in actual practice in the real-world. It is only an example how you could add similar data to patient records.

[PhDResearchGWU]

Jason: Thanks again. Is there a way to insert a statistical value to have Synthea model the data to represent occurrence values for a representative sample? For example, if we know that patients consent to providing their PHI data for research purposes about 60% of the time, could we model "Consent" in Synthea similar to column Z shown below? Likewise, could we model the Covered Entities' use of that data for research as shown in column "AB" below? Would be delighted to have a brief telephone call if you time permits. My phone number is 615-252-2333. Likewise, I would be happy to schedule a zoom call or call you directly if you prefer to provide your phone number or a preferred time to conduct a zoom call. All the best, AJ Bahou, Esq., PE PhD Candidate - George Washington University [image: image.png]

…

On Mon, Mar 17, 2025 at 8:05 AM Jason Walonoski ***@***.***> wrote: You would have to edit each module where you would want to add consent and authorization. One example for consent to a research is available in the Module Builder... - Navigate to https://synthetichealth.github.io/module-builder/ - Click "GitHub Modules" - Click "alzheimer_refresh" - Click "anti_amyloid_beta_monoclonal_antibody_treatment.json" - Find and examine the following states: - Initial assessment for clinical trial - Patient consented to clinical trial - Enrollment in clinical trial image.png (view on web) <https://github.com/user-attachments/assets/560843c4-d12e-408e-8f76-bf0e54da6bfa> Warning This example probably does not match codes or patterns used in actual practice in the real-world. It is only an example how you could add similar data to patient records. — Reply to this email directly, view it on GitHub <#1565 (comment)>, or unsubscribe <https://github.com/notifications/unsubscribe-auth/BPZ4UM3FQAXAWK7QA52QF7D2U3CCNAVCNFSM6AAAAABZC34LK2VHI2DSMVQWIX3LMV43URDJONRXK43TNFXW4Q3PNVWWK3TUHMYTENJSGUYDSNQ> . You are receiving this because you authored the thread.Message ID: ***@***.*** com>

[jawalonoski]

I can't see the image or the referenced columns.

But yes, it would be easy to make a module only consent 60% of the people using a Distributed Transition.