Clinical And Registry Entries (CARE) Semantic Model

Take CARE of your data! FAIRly!

Full Documentation

You can explore the complete documentation here, including detailed descriptions of all data elements, implementation guidelines, exemplar data, and additional resources.

Communication and feedback

Your feedback is more than welcome. It will help us improve our semantic data model. Please use github issues to provide your feedback.

Cite us

If you used CARE-SM in your work, please cite our papers:

@inproceedings{caresm2024,
  author       = {Pablo Alarc{\'o}n-Moreno and Mark Denis Wilkinson},
  title        = {{Take CARE of your patient data: Clinical And Registry Entries (CARE) Semantic Model}},
  booktitle    = {Proceedings of the 15th International Conference on Semantic Web Applications and Tools for Health Care and Life Sciences (SWAT4HCLS 2024)},
  year         = {2024},
  publisher    = {CEUR-WS.org},
  series       = {CEUR Workshop Proceedings},
  volume       = {3890},
  url          = {https://ceur-ws.org/Vol-3890/paper-11.pdf}
}

Previous pubication: Semantic modeling of common data elements for rare disease registries, and a prototype workflow for their deployment over registry data.

Acknowledgement

This work was originated in the European Joint Programme on Rare Diseases (EJP RD) project which has received funding from the European Union's Horizon 2020 research and innovation programme under grant agreement N°82557.

After the end of EJP RD project, this work was led and mantained by several researchers of the Wilkinsonlab at Universidad Politécnica de Madrid.