Take CARE of your data!
FAIRly!
- What is CARE-SM for
- Full Documentation
- Implementation
- Communication and feedback
- Cite us
- Acknowledgement
Clinical And Registry Entries (CARE-SM) is a semantic data model designed to effectively represent healthcare patient information by using knowledge graphs represented in the Resource Description Framework (RDF). This technical description aims to provide a comprehensive overview of CARE-SM, its origins, and the design principles that underlie its structure.
CARE-SM is a more robust and matured representation of its precursor, the Common Data Element (CDE) semantic data model. The primary objective of its creation was to develop a semantic data model capable of representing a set of common data elements for rare diseases registration recommended by the European Commission Joint Research Centre. CARE-SM stands as the matured iteration of this CDE semantic model, extending its capabilities to encompass the representation of all data elements pertinent to patient registries and clinical encounters.
Explore our specification here for full documentation, examples, operational details and other information.
This repository primarily focuses on presenting the principles behind the data model and its behavior through a theoretical description.
For information on various workflows for implementing this data model, visit our CARE-SM implementation repository.
Your feedback is more than welcome. It will help us improve our semantic data model. Please use github issues to provide your feedback.
To cite this model please use these publications:
Take CARE of your patient data. Clinical And Registry Entries (CARE) Semantic Model
This work was done in the European Joint Programme on Rare Diseases (EJP RD) project which has received funding from the European Union's Horizon 2020 research and innovation programme under grant agreement N°82557.
