An API for querying federated pediatric cancer data from the broader community.
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Data federation enables users to pull data from various resources as if they were accessing a single virtual database, rather than consolidating all data into a single centralized repository. The data remain at the original source but become searchable and findable to the research community through a standard application programming interface (API). This allows the creation of a virtual cohort and facilitates large-scale analytic research by making deidentified participant-level data (non-PHI/PII) findable across the sources.
The Childhood Cancer Data Initiative (CCDI) is piloting data federation with the Kids First Data Resource Center, the Pediatric Cancer Data Commons, St. Jude Cloud, and the Treehouse Childhood Cancer Data Initiative. These resources provide information about genomic, clinical, imaging, and biospecimen data in these data sets. This list will expand as more organizations implement CCDI’s data federation API.
Researchers can search for deidentified individual-level data through the API, which provides metadata that aids in the creation of virtual cohorts across multiple data types from participating resources by accessing CCDI's federation API.
The API does not deliver files. Instead, it provides an open-access subset of the metadata (e.g., demographics) that match a user’s search criteria and indicates the location of the complete data set. The data are accessible according to the policies at each contributing resource.
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The CCDI Data Federation Resource offers a suite of resources including the OpenAPI Specification, Data Federation Resource Wiki, and GitHub Repository to support participating node development. You may also get assistance or report an issue.
Read more about CCDI Federation API in the blog.
We invite the community to join us in empowering research through CCDI data federation. Organizations that implement CCDI’s data federation API harmonize data according to CCDI standards to ensure data are searchable.
If interested in becoming a member of the CCDI Data Federation Resource, please send an email to [email protected].
Contact us with questions related to CCDI federated data or accessing the CCDI Data Ecosystem.