EU-EHDS: Adds references to EHDS, HealthDCAT-AP

- adds references (in ReSpec format) to HTML
- updates `references.json` (does not update other HTML files)
- closes #239 by @brennanraj

Co-authored-by: Rob Brennan <[email protected]>

2.1/legal/eu/ehds/eu-ehds-en.html

@@ -498,6 +498,14 @@
   "IEEE-P7012": {
     "title": "IEEE Draft Standard for Machine Readable Personal Privacy Terms",
     "href": "https://standards.ieee.org/ieee/7012/7192/",
+  },
+  "HealthDCAT-AP": {
+    "title": "HealthDCAT-AP",
+    "href": "https://healthdcat-ap.github.io/"
+  },
+  "EHDS": {
+    "title": "Proposal for a REGULATION OF THE EUROPEAN PARLIAMENT AND OF THE COUNCIL on the European Health Data Space",
+    "href": "https://eur-lex.europa.eu/legal-content/EN/TXT/?uri=CELEX:52022PC0197"
   }
 }  };
 </script>
@@ -513,7 +521,7 @@
   <small><i>(IDLab, IMEC, Ghent University)</i></small>.
 <small>NOTE: The affiliations are informative, do not represent formal endorsements, and may be outdated as this list is generated automatically from existing data.</small></p>
   <section id="abstract">
-    <p>This extension provides concepts to support implementations of the upcoming EU Health Data Space (EHDS) regulation by providing concepts and methods for implementing the regulation, as well as to support its alignment with other regulations such as GDPR, DGA, and AI Act.</p>
+    <p>This extension provides concepts to support implementations of the upcoming EU Health Data Space ([[EHDS]]) regulation by providing concepts and methods for implementing the regulation, as well as to support its alignment with other regulations such as GDPR, DGA, and AI Act.</p>
     <p style="color: red">NOTE: This is a draft vocabulary, which will be updated as EHDS is published and formally recognised as a regulation. The DPVCG welcomes participation and contributions for this work.</p>
   </section>
     <div id="feedback-notice" class="notoc" style="background-color: #fbe9e9;border: 1px solid red;padding: 5px;">
@@ -534,10 +542,10 @@
 
   <section id="motivation">
     <h2>Introduction</h2>
-    <p>The <a href="https://health.ec.europa.eu/ehealth-digital-health-and-care/european-health-data-space_en">European Health Data Space (EHDS)</a> is an upcoming regulation that establishes a data space for the sharing and reuse of 'health data'. The regulation is expected to be published in 2025, and will outline the specific framework and obligations for implementing the health data space(s). The document establishing an agreed text between the EU's law-making bodies can be found in the associated <a href="https://www.consilium.europa.eu/en/press/press-releases/2024/03/15/european-health-data-space-council-and-parliament-strike-provisional-deal/">press release</a> (<a href="https://www.consilium.europa.eu/media/70909/st07553-en24.pdf">direct link to PDF</a>). While the final text will contain revisions, the intent and implementing aspects of the regulation can be expected to be the same.</p>
-    <p>The implementation of the EHDS is of great interest due to its potential for unlocking and expanding the use of data currently stored in various health institutions, and to use this for progressive scientific research that will enhance healthcare and benefit society. For this, the <a href="https://ehds2pilot.eu/">HealthData@EU Pilot</a> is a pilot project that is building the infrastructure for implementing the EHDS. It is creating the <a href="https://healthdcat-ap.github.io/">HealthDCAT-AP</a> specification, which expands the well-adopted <a href="https://joinup.ec.europa.eu/solution/dcat-application-profile-data-portals-europe">DCAT-AP</a> specification for specifying metadata and catalogues of health datasets, which can then be accessed and reused via a common portal.</p>
-    <p>The HealthDCAT-AP's specification reuses [[DPV]] concepts and properties to represent information about personal data, legal bases, purpose, and jurisdiction. See the <a href="https://lists.w3.org/Archives/Public/public-dpvcg/2024Dec/0000.html">note on DPVCG mailing list</a> for more details. The aim of this extension is thus to support implementations like HealthDCAT-AP by providing a specific vocabulary that extends [[DPV]] concepts to represent the categories of personal data, legal bases, purposes, technical and organisational measures, and other processes and artefacts that are necessary to implement and support the EHDS. In this, we seek to work closely with efforts such as the HealthData@EU to avoid duplication of efforts and to develop a consistent and useful solution for stakeholders.</p>
-    <p>The rest of the document describes a draft vocabulary that was developed based on the initial documents of the EHDS, and which shows how the concepts from the regulation can be modelled within the framework of [[DPV]] specifications to enable implementing the requirements of the EHDS. As the state of the EHDS regulation progresses towards a formal publication and then real-world implementation, the DPVCG will be updating this vocabulary with more concepts and guidance to support use-cases.</p>
+    <p>The [[EHDS]] is an upcoming regulation that establishes a data space for the sharing and reuse of 'health data'. The regulation is expected to be published in 2025, and will outline the specific framework and obligations for implementing the health data space(s). The document establishing an agreed text between the EU's law-making bodies can be found in the associated <a href="https://www.consilium.europa.eu/en/press/press-releases/2024/03/15/european-health-data-space-council-and-parliament-strike-provisional-deal/">press release</a> (<a href="https://www.consilium.europa.eu/media/70909/st07553-en24.pdf">direct link to PDF</a>). While the final text will contain revisions, the intent and implementing aspects of the regulation can be expected to be the same.</p>
+    <p>The implementation of the [[EHDS]] is of great interest due to its potential for unlocking and expanding the use of data currently stored in various health institutions, and to use this for progressive scientific research that will enhance healthcare and benefit society. For this, the <a href="https://ehds2pilot.eu/">HealthData@EU Pilot</a> is a pilot project that is building the infrastructure for implementing the [[EHDS]]. It is creating the [[[HealthDCAT-AP]]] specification, which expands the well-adopted <a href="https://joinup.ec.europa.eu/solution/dcat-application-profile-data-portals-europe">DCAT-AP</a> specification for specifying metadata and catalogues of health datasets, which can then be accessed and reused via a common portal.</p>
+    <p>The [[HealthDCAT-AP]]'s specification reuses [[DPV]] concepts and properties to represent information about personal data, legal bases, purpose, and jurisdiction. See the <a href="https://lists.w3.org/Archives/Public/public-dpvcg/2024Dec/0000.html">note on DPVCG mailing list</a> for more details. The aim of this extension is thus to support implementations like [[HealthDCAT-AP]] by providing a specific vocabulary that extends [[DPV]] concepts to represent the categories of personal data, legal bases, purposes, technical and organisational measures, and other processes and artefacts that are necessary to implement and support the [[EHDS]]. In this, we seek to work closely with efforts such as the HealthData@EU to avoid duplication of efforts and to develop a consistent and useful solution for stakeholders.</p>
+    <p>The rest of the document describes a draft vocabulary that was developed based on the initial documents of the [[EHDS]], and which shows how the concepts from the regulation can be modelled within the framework of [[DPV]] specifications to enable implementing the requirements of the [[EHDS]]. As the state of the [[EHDS]] regulation progresses towards a formal publication and then real-world implementation, the DPVCG will be updating this vocabulary with more concepts and guidance to support use-cases.</p>
     <aside class="issue" data-number="201"></aside>
   </section>